Skin Cancer Support Resources

Help for Patients and Caregivers

Robins Nest LogoA skin cancer diagnosis can be physically, emotionally and financially challenging. You’re not alone. Our Robins Nest program provides you with a carefully curated list of organizations that offer assistance with insurance, health care costs, transportation, coping support and other issues that arise with a skin cancer diagnosis. Find out more about Robins Nest.

We’re here to guide you. Below is a list of support organizations broken down into categories. Note that this is by no means a complete list of organizations. Think of it as a way to help you answer the question: “Where do I begin?”

Start by selecting a category that best describes your need. If you don’t see what you’re looking for, scroll down to review our complete list of resources.

Treatment Assistance

  • Health care cost assistance
  • Health insurance assistance
  • Medication & copay assistance
  • Pain management
  • Physician/Treatment center/Clinical trials finder

Supplemental Financial Support

  • Food
  • Lodging/Housing
  • Transportation
  • Other

Disease Specific Organizations

  • Melanoma
  • Merkel cell carcinoma

Advocate Groups

  • Patient & survivor advocacy
  • Case management
  • Legal aid
  • General organizations

Coping with Cancer

  • Patient support groups
  • Survivorship groups
  • Young adult groups
  • Programs to help you
    look and feel better

Caregiver & Family Support

  • Caregiver resources
  • Home care
  • Hospice & palliative care

TREATMENT ASSISTANCE

If you cannot afford to treat your skin cancer (or think you cannot), financial assistance may be available to help you get the medical care and medications you need. Treatment is important. It can prevent the cancer from spreading or becoming disfiguring. There are steps you can take to get the treatment you need.

Treatment Assistance Resources


HEALTH CARE COST ASSISTANCE

Benefits.gov

You can search benefits.gov for U.S. government benefits you might be eligible for.

Website: www.benefits.gov/


Cancer Care

Cancer Care offers limited financial assistance for cancer-related costs and co-pays, and their professional oncology social workers can help you find additional resources.

Website: www.cancercare.org/financial_assistance
Telephone: 800.813.HOPE (4673)


Cancer Support Community

The Cancer Support Community has gathered valuable information from many sources to create an online guide to help you deal with the significant financial matters related to cancer.

Website: www.cancersupportcommunity.org/living-cancer-topics/managing-cost-cancer-treatment
Telephone: 888.793.9355


Dial 211 for Essential Community Services

In many states, dialing 211 provides a shortcut through the maze of health and human services agencies offering medical support programs. Calls are routed to a local or regional calling center where referral specialists match caller needs to available resources and link or refer them directly to an agency or organization that can help. To find out whether 211 services are offered in your area, visit 211.org. Support services vary.

Website: www.211.org
Telephone: 211


Health Resources and Services Administration Hill-Burton Free Hospital Care

Hill-Burton free and reduced cost care facilities offer free or reduced cost hopsital care based on family size and need. Online, you can find a list of these facilities, information on meeting medical bills that are beyond a patient’s means and a free care brochure.

Website: www.hrsa.gov/gethealthcare/affordable/hillburton/facilities.html
Telephone: 800. 638.0742 or 800.492.0359 for Maryland residents


National Association of Free & Charitable Clinics

If you don’t have health insurance and are diagnosed with an early skin cancer, you may be able to find help at a free or low-cost health clinic. Some clinics focus mainly on providing primary medical or dental care, while other clinics provide a wide array of services. Search for one near you.

Website: www.nafcclinics.org/find-clinic
Telephone: 703.647.7427
Email: Info@nafcclinics.org


The National Comprehensive Cancer Network® (NCCN) Reimbursement Resource Room

The NCCN Virtual Reimbursement Resource Room is available for patients to search for reimbursement help and services available to help mitigate reimbursement challenges.

Website: www.nccn.org/reimbursement_resource_room/default.aspx
Telephone: 215.690.0300
Email: tredwell@nccn.org


Patient Advocate Foundation

The Patient Advocate Foundation serves as an active liaison between the patient and the insurer, employer and/or creditors to ensure access to care, maintenance of employment and reservation of financial stability. Case managers, doctors and attorneys work through the Foundation. View their Case Management services page, or click “Explore Our Resources” on the top menu of the website to see a list of support services offered

Website: www.patientadvocate.org
Telephone: 800.532.5274
Email: help@patientadvocate.org


Vital Options® International Vital Grant Program

The Selma Schimmel Vital Grant is a financial support program focused on helping patients and families who are enduring financial hardship while battling cancer and other life-threatening illnesses. The Vital Grant program funds things like transportation to treatment, treatment costs, medication, groceries and other expenses. The program is administered by Vital Options International’s partner foundations with the capacity and infrastructure to accept applications from patients and families and distribute the funds.

Website: www.vitaloptions.org/voi-vital-grants/
Telephone: 818.508.5657
Email: info@vitaloptions.org

HEALTH INSURANCE ASSISTANCE

Cancer Care

Cancer Care offers limited financial assistance for cancer-related costs and co-pays, and their professional oncology social workers can help you find additional resources.

Website: www.cancercare.org/financial_assistance
Telephone: 800.813.HOPE (4673)


The Healthwell Foundation

The Healthwell Foundation is a leading nonprofit dedicated to improving access to care for America’s underinsured.

Website: www.healthwellfoundation.org
Telephone: 800.675.8416


The National Comprehensive Cancer Network®(NCCN) Reimbursement Resource Room

The NCCN Virtual Reimbursement Resource Room is available for patients to search for reimbursement help and services available to help mitigate reimbursement challenges.

Website: www.nccn.org/reimbursement_resource_room/default.aspx
Telephone: 215.690.0300
Email: tredwell@nccn.org


Patient Advocate Foundation Personalized Medicine CareLine

The Patient Advocate Foundation offers a Personalized Medicine CareLine to assist patients, caregivers and providers who are encountering barriers accessing targeted therapies, immunotherapies or clinical trials that have been recommended. CareLine services include assisting with prior authorizations, screening and enrollment in insurance and social programs, appeals assistance, coding and billing issues, disability eligibility and enrollment, debt crisis and cost of living assistance and identifying solutions to out of pocket medical costs.

Website: www.patientadvocate.org
Connect with services: www.patientadvocate.org/connect-with-services/case-management-services-and-medcarelines/
Online assistance form: patientadvocate.qualtrics.com/jfe/form/SV_9Ww6p8qW4Fy0fiZ
Telephone: 866.460.1928


Patient Advocate Foundation

The Patient Advocate Foundation serves as an active liaison between the patient and the insurer, employer and/or creditors to ensure access to care, maintenance of employment and reservation of financial stability. Case managers, doctors and attorneys work through the Foundation. View their Case Management services page, or click “Explore Our Resources” on the top menu of the website to see a list of support services offered.

Website: www.patientadvocate.org
Telephone: 800.532.5274
Email: help@patientadvocate.org

MEDICATION AND CO-PAY ASSISTANCE

Patient Advocate Foundation (PAF) Copay Relief

The PAF Co-Pay Relief Program provides direct financial assistance to insured patients who meet certain qualifications to help them pay for the prescriptions and/or treatments they need. This assistance helps patients afford the out-of-pocket costs for these items that their insurance companies require.

Website: www.patientadvocate.org/connect-with-services/copay-relief/
Telephone: 866.512.3861


Patient Access Network (PAN) Foundation

The Patient Access Network Foundation is dedicated to providing help and hope to underinsured patients unable to afford high cost specialty medciations. PAN provides financial assistance to support the cost sharing obligations (i.e., co-pays, deductibles) of patients through nearly 60 disease-specific programs designed to help patients being treated for certain chronic illnesses, rare diseases and cancers including advanced basal cell carcinoma and metastatic melanoma.

PAN also has a fund finder where you can sign up to receive alerts for available funding related to your diagnosis.

Website: www.PANFoundation.org
Telephone: 866.316.7263
Email: info@panfoundation.org


Patient Services Inc.

A nonprofit premium and copayment foundation serving people with a range of medical conditions, Patient Services Inc. provides funding for bone metastases and metastatic melanoma.

Website: www.patientservicesinc.org/
Telephone: 800.366.7741
Contact form: www.patientservicesinc.org/contact

PHARMACEUTICAL PATIENT ASSISTANCE PROGRAMS

Pharmaceutical companies often provide assistance to help patients get access to the medications they need. Below is a list of companies that offer patient assistance.


PhRMA’s Medicine Assistance Tool (MAT)

MAT is an online directory designed to help patients, caregivers and health care providers learn more about and search through the resources that the pharmaceutical industry offers.

Website: medicineassistancetool.org/My-Resources
Online contact form: medicineassistancetool.org/Contact-Us

PAIN MANAGEMENT

American Society of Regional Anesthesia and Pain Medicine (ASRA)

ASRA is a partner of the American Society of Anesthesiologists (ASA) focusing on pain management therapies and treatments. Their website includes information on the specifics of cancer pain, chronic pain management and treatment options for chronic pain.

Website: www.asra.com/page/45/types-of-chronic-pain

The National Comprehensive Cancer Network®(NCCN)
National Comprehensive Cancer Center member institutions conduct clinical trials trials funded by the NCCN Oncology Research Program (ORP). Click here for a list broken out by cancer type or use the link below to search for a trial.
Website: www.nccn.org/patients/about/default.aspx


The Alliance for Clinical Trials in Oncology
This group develops and conducts clinical trials with promising new cancer therapies and utilizes the best science to develop optimal treatment and prevention strategies for cancer, as well as researches methods to alleviate side effects of cancer and cancer treatments.

Website: www.allianceforclinicaltrialsinoncology.org
Telephone: 877.442.2542
Email: info@alliancefoundationtrials.org


National Cancer Institute (NCI)
NCI is the US government’s source of information on the latest cancer treatments and clinical trials, as well as insurance, hospice and home care. Callers to the toll-free number can be referred to community activities and support services. Spanish speakers are available.

Website: www.cancer.gov
Telephone: 800.4.CANCER (422.6237)
Email: cancergovstaff@mail.nih.gov

Please note: The Skin Cancer Foundation provides links to search tools to help you locate physicians and other health care programs. These links are provided as a resource and do not signify our endorsement of the physicians and programs listed therein.

Skin Cancer Foundation physician finder
www.skincancer.org/treatment-resources/find-a-dermatologist/

American Academy of Dermatology (AAD) physician finder
www.aad.org/public#

Note: The Skin Cancer Foundation provides links to search tools to help you locate physicians and other health care programs. These links are provided as a resource and do not signify our endorsement of the physicians and programs listed therein.

National Comprehensive Cancer Network (NCCN) member institutions:
www.nccn.org/members/network.aspx

Note: The Skin Cancer Foundation provides links to search tools to help you locate physicians and other health care programs. These links are provided as a resource and do not signify our endorsement of the physicians and programs listed therein.

SUPPLEMENTAL FINANCIAL SUPPORT

In addition to health care costs, skin cancer patients may require assistance with transportation to and from treatment, housing and lodging if travel is necessary, as well as other expenses. Below are some places to turn for help.

Financial Support Resources

Cancer Support Community

The Cancer Support Community has gathered valuable information from many sources to create an online guide to will help you deal with the significant financial matters related to cancer.

Website: www.cancersupportcommunity.org/living-cancer-topics/managing-cost-cancer-treatment
Telephone: 888.793.9355


FOOD

Feeding America

Feeding America’s mission is to feed America’s hungry through a nationwide network of member food banks. Visit their website or call their hotline to find the food bank closest to you.

Website: www.feedingamerica.org
Telephone: 800.771.2303


Dial 211 for Essential Community Services

In many states, dialing 211 provides a shortcut through the maze of health and human services agencies offering medical support programs. Calls are routed to a local or regional calling center where referral specialists match caller needs to available resources, and link or refer them directly to an agency or organization that can help. to find out whether 211 services are offered in your area, visit 211.org. Support services vary.

Website: www.211.org
Telephone: 211

CANCER CENTER LODGING/HOUSING

Many hotels near cancer centers and major health care facilities offer discounts to patients. Below is a list of housing resources for patients and their families when they travel for medical treatment.

American Cancer Society Hope Lodge

The American Cancer Society Hope Lodge is available in many states, helping cancer patients and their caregivers can find free lodging when home is far away. See the website for details. If there is no Hope Lodge in your state, call 1.800.227.2345 for lodging assistance.

Website: www.cancer.org/treatment/supportprogramsservices/hopelodge/


Cancer Support Community

In 2019, Airbnb announced a strategic partnership with the Cancer Support Community to provide free housing for cancer patients and caregivers, provided they meet certain geographic and income criteria.

Website: www.cancersupportcommunity.org/airbnb
Telephone: 877.793.0498


Dana-Farber Cancer Institute
Lodging for patients and families. Located in Boston, Massachusetts.

Website: www.dana-farber.org/for-patients-and-families/becoming-a-patient/planning-your-visit/places-to-stay-near-dana-farber/
Telephone: 617.632.3750


Fox Chase Cancer Center
Lodging for patients and families. Located in Philadelphia, Pennsylvania.

Website: www.fccc.edu/patients/resources/lodging/index.html
Telephone: 888.369.2427


Fred Hutchinson Cancer Research Center
Lodging for patients and families. Housing is offered through the Seattle Cancer Care Alliance, located in Seattle, Washington.

Website: www.seattlecca.org/housing-information
Telephone: 206.606.7263
Email housing@seattlecca.org


Hosts for Hospitals
Lodging for patients and families. Located in Philadelphia, Pennsylvania.

Website: www.hostsforhospitals.org/
Telephone: 484.380.2999
Email: lodging@hostsforhospitals.org
Online contact form: www.hostsforhospitals.org/contact-us/


Joe’s House
A nationwide lodging guide for cancer patients.

Website: www.joeshouse.org
Telephone: 877.563.7468
Email: info@joeshouse.org


Mayo Clinic
Lodging assistance for patients and families. Located in Arizona, Florida and Minnesota.

Website: www.mayoclinic.org/patient-visitor-guide/


MD Anderson Cancer Center
Patient Travel Services provided by MD Anderson has access to MD Anderson airline, lodging and ground transportation discounts and rates for patients and their families. Located in Houston, Texas.

Website: www.mdanderson.org/patient-and-cancer-information/guide-to-md-anderson/getting-here/lodging.html
Telephone: 866.964.2459
Email: patienttravel@mdanderson.org


The Sidney Kimmel Comprehensive Cancer Center at Johns Hopkins Hospital
Lodging assistance for patients and their families. Located in Baltimore, Maryland.

Website: www.hopkinsmedicine.org/the_johns_hopkins_hospital/planning_visit/hotels_housing/hotels.html
Telephone: 410.464.6713 or 410.955.5000 for Maryland residents


UNC Lineberger Comprehensive Cancer Center
Lodging assistance for patients and their families. Located in Chapel Hill, North Carolina.

Website: www.secufamilyhouse.org/staying-here
Telephone: 919.932.8000
Online contact form: www.secufamilyhouse.org/about/contact-us

Transportation

Angel Flight East

AFE facilitates free air transportation to children and adults in need of medical treatment far from home. AFE’s footprint is from Virginia to Ohio to Maine but for destinations beyond that the organization links up with other volunteer pilot organizations.

Website: www.angelflighteast.org
Telephone: 215.358.1900
Email: missions@angelflighteast.org


Angel Flight Central

Angel Flight Central serves people in need by arranging charitable flights for health care or other humanitarian purposes.

Website: www.angelflightcentral.org
Phone: 866.569.9464
Email: request@angelflightcentral.org


Angel Flight West

Angel Flight West is one of six regional Angel Flight organizations that work with Mercy Medical Airlifts to take patients to health care facilities or distant destinations free of charge.

Website: www.angelflightwest.org
Telephone: 888.426.2643
Email: coordination@angelflightwest.org


Angel Flight

Angel Flight was created by a group of pilots who believe in the benefit of volunteering. See their nationwide flight locator:

Website: www.angelflight.com/locator/
Phone: 918.749.8992


Air Care Alliance

Air Care Alliance is a nonprofit public service organization supporting the work of volunteer-based charitable organizations whose members fly to help others. See their nationwide flight locator:

Website: www.aircarealliance.org/directory-groups
Request a flight: www.aircarealliance.org/submit-request-for-assistance/
Email: info@aircarealliance.org


Corporate Angel Network

Corporate Angel Network provides space on corporate and private jets free of charge to cancer patients who must travel long distances for treatment. Please note: you may register online but you must also speak directly with them. You may ask to be called or call them directly.

Website: www.corpangelnetwork.org
Telephone: 914.328.1313
Online contact form: www.corpangelnetwork.org/#/ContactUs
Email: info@corpangelnetwork.org


Mercy Medical Angels

Mercy Medical Angels provides transportation on the ground and in the air to clinical care for those in need, ensuring that no one is denied medical care because they don’t have transportation.

Website: mercymedical.org/
Telephone: 757.318.9174
Online contact form: mercymedical.org/contact-us/


MD Anderson Cancer Center Patient Travel Services

MD Anderson’s Patient Travel Program offers discounts on unrestricted, changeable, non-penalty airfares as well as change fee waivers on restricted fares from anywhere in the United States (and most of the world) for patients and their caregivers coming to Houston.

Website: www.mdanderson.org/patients-family/becoming-our-patient/getting-to-md-anderson/traveling-to-houston.html
Telephone: 888.848.9992
Email: patienttravel@mdanderson.org


Patient Advocate Foundation

TThe Patient Advocate Foundation offers a fund for patients with Merkel cell carcinoma (MCC).
Once approved, the fund provides one-time assistance of $450 to cover transportation-related expenses connected to treatment appointments. Eligible patients include those who are undergoing active treatment, have received treatment within the previous six months, or will be receiving treatment in the next 60 days. Each patient must meet household income guidelines and provide diagnosis documentation in order to finalize the application.

Website: www.patientadvocate.org/connect-with-services/financial-aid-funds/

Access2Care

Access2Care manages the transportation experience for those receiving non-emergency medical transportation benefits through Medicaid or Medicare.

Website: www.access2care.net/
Online contact form: www.access2care.net/contact


American Cancer Society/Lyft Road to Recovery Program

The American Cancer Society Road To Recovery program provides transportation to and from treatment for people with cancer who do not have a ride or are unable to drive themselves.

Website: www.cancer.org/treatment/support-programs-and-services/road-to-recovery.html
Telephone: 800.227.2345


Uber Health

Uber partners with numerous doctors and health facilities for patient transportation services.

Website: www.uberhealth.com
Online contact form: www.uberhealth.com/landing/enroll


Ride United

Ride United is a transportation access initiative launched by United Way with partners like Lyft and the 211 network. It addresses unmet transportation needs for individuals and families across the U.S.

Website: www.unitedway.org/our-impact/featured-programs/2-1-1/ride-united
Telephone: Dial 211

Other

Dial 211 for Essential Community Services

In many states, dialing 211 provides a shortcut through the maze of health and human services agencies offering medical support programs. Calls are routed to a local or regional calling center where referral specialists match caller needs to available resources and link or refer them directly to an agency or organization that can help. To find out whether 211 services are offered in your area, visit www.211.org. Support services vary.

Website: www.211.org
Telephone: 211

DISEASE SPECIFIC INFORMATION

Disease Specific Resources

Melanoma

American Melanoma Foundation

The American Melanoma Foundation maintains a support group in San Diego, CA and will advise anyone wanting to start a support group. AMF also gives information about melanoma from screening to staging and clinical trials that patients may wish to join.

Web Site: www.myamf.org
Telephone: 858.882.7712
Online contact form: melanomafoundation.org/contact
Email: info@melanomafoundation.org


Melanoma International Foundation

The Melanoma International Foundation’s phone number is a “patient navigation hotline” to help patients and their families gain a better understanding of the disease and where to go for treatment. Most answers to questions and information are offered via email.

Website: www.melanomainternational.org
Telephone: 866.463.6663
Email: contact@melanomainternational.org


Melanoma Research Foundation (MRF)

Committed to the support of medical research in finding effective treatments and eventually a cure for melanoma, MRF can assist in locating cancer treatment centers specializing in melanoma or specifically pediatric, ocular or mucosal melanomas.

Website www.melanoma.org
Telephone: 800.673.1290
Email: info@melanoma.org


Patient Access Network (PAN) Foundation

The Patient Access Network Foundation (PAN) is dedicated to providing help and hope to underinsured patients unable to afford high cost specialty medciations. PAN provides financial assistance to support the cost sharing obligations (i.e., co-pays, deductibles) of patients through nearly 60 disease-specific programs designed to help patients being treated for certain chronic illnesses, rare diseases and cancers. The PAN website also has a FundFinder with up to date availability of funding resources for specific diseases. Two of PAN’s programs are for patients with advanced basal cell carcinoma and metastatic melanoma.

Website www.PANFoundation.org
Telephone: 866.316.7263


Patient Services Incorporated (PSI)

PSI provides financial support and guidance for qualified patients with specific, rare chronic diseases.

Website: www.patientservicesinc.org/
Telephone: 800.366.7741
Contact form: www.patientservicesinc.org/contact


Kelly’s Dream

Kelly’s dream raises awareness of melanoma and provides financial assistance for patients in the state of Maryland.

Website: www.kellysdream.org/

Merkel Cell Carcinoma

MerkelCell.org

MerkelCell.org was created by physicians and researchers who work on Merkel cell carcinoma (MCC), a rare and aggressive skin cancer, to answer frequently asked questions and provide accurate information about this disease.

Website: merkelcell.org
Email: mccteam@uw.edu
Find an MCC specialist: merkelcell.org/resources/find-a-specialist/


Patient Advocate Foundation

The Patient Advocate Foundation offers a fund for patients with Merkel cell carcinoma (MCC).

Once approved, the fund provides one-time assistance of $450 to cover transportation-related expenses connected to treatment appointments. Eligible patients include those who are undergoing active treatment, have received treatment within the previous six months, or will be receiving treatment in the next 60 days. Each patient must meet household income guidelines and provide diagnosis documentation in order to finalize the application.

Website: www.patientadvocate.org/connect-with-services/financial-aid-funds/


Merkel Cell Carcinoma Seattle Support Group

This support group is a flexible, open discussion group located in Seattle, WA for anyone touched by Merkel cell carcinoma (MCC), including patients, spouses, family and friends. This is an informal opportunity to meet others coping with MCC, share stories and information, answer questions and provide support. They have first-hand knowledge and experience to share about treatments, clinical research trials and coping with MCC.

Website: sites.google.com/site/merkelcellcarcinomaseattle/home

ADVOCATE GROUPS

The following advocacy organizations offer programs and services for patients and survivors to help them navigate the complex landscape of a skin cancer diagnosis and improve both their quality of care and quality of life.

Advocacy Resources


PATIENT AND SURVIVOR ADVOCACY

Cancer Support Community/Gilda’s Club

Cancer Support Community provides a vast range of professional programs offering emotional support, education and hope for people impacted by cancer at no charge. Their services are online as well as 175 locations worldwide and include extensive educational materials in many languages. See the survivorship and advocacy sections of the website for more information.

Website: www.cancersupportcommunity.org/
Support links: www.cancersupportcommunity.org/find-support
Telephone: 888.793.9355
Email: help@cancersupportcommunity.org


Patient Advocate Foundation

The Patient Advocate Foundation serves as an active liaison between the patient and the insurer, employer and/or creditors to ensure access to care, maintenance of employment and reservation of financial stability. Case managers, doctors and attorneys work through the Foundation. View their Case Management services page, or click “Explore Our Resources” on the top menu of the website to see a list of support services offered.

Website: www.patientadvocate.org
Telephone: 800.532.5274
Email: help@patientadvocate.org


National Coalition for Cancer Survivorship

This survivor-led organization works on behalf of the country’s more than 9 million cancer survivors and the millions more living with, through and beyond this disease.

Website: www.canceradvocacy.org
Telephone: 877.622.7937  or 800.532.5274
Email: info@canceradvocacy.org


The National Comprehensive Cancer Network® (NCCN®)

NCCN is a not-for-profit alliance of 28 leading cancer centers dedicated to improving and facilitating quality, effective, efficient and accessible cancer care so patients can live better lives. The NCCN website includes a list of NCCN Cancer Centers, clinical guidelines for patients and expert guidance from the world’s leading doctors and cancer centers free of charge.

Website: www.nccn.org/patients/about/default.aspx
Telephone: 215.690.0300
Online contact form: www.nccn.org/patients/contact/default.aspx


Vital Options® International

A leader in patient advocacy, Vital Options is committed to giving a voice to patients, caregivers, families and healthcare professionals through their Vital Conversations and Advocacy In Action programs. This blend of patient stories and insights from healthcare professionals provides patients and their families valuable guidance about the treatment and support they need.

Advocacy in Action: www.vitaloptions.org/advocacy-in-action/
Vital Conversations: www.vitaloptions.org/vital-conversations/
Telephone: 818.508.5657
Email: info@vitaloptions.org

CASE MANAGEMENT

Patient Advocate Foundation

The Patient Advocate Foundation serves as an active liaison between the patient and the insurer, employer and/or creditors to ensure access to care, maintenance of employment and reservation of financial stability. Case managers, doctors and attorneys work through the Foundation. View their Case Management services page, or click “Explore Our Resources” on the top menu of the website to see a list of support services offered.

Website: www.patientadvocate.org
Telephone: 800.532.5274
Email: help@patientadvocate.org

LEGAL AID

NCLSN National Cancer Legal Services Network

NCLSN hosts a huge number of organizations across the U.S. that provide legal services to cancer patients, caregivers and families, including representation for issues such as advocacy, career and insurance disputes.

Website: www.nclsn.org/
Online contact: www.nclsn.org/contact-us/

General Organizations

American Academy of Dermatology (AAD)

The AAD represents virtually all practicing dermatologists in the U.S., as well as a growing number of international dermatologists. It provides information and educational material on all aspects of melanoma, other skin cancers and skin care. A “Find a Dermatologist” listing is offered on the website.

Website: www.aad.org/diseases/skin-cancer
Telephone: 888.462.3376
Online contact us form: server.aad.org/Forms/ContactUs/


Cancer Support Community/Gilda’s Club

Cancer Support Community provides a vast range of professional programs offering emotional support, education and hope for people impacted by cancer at no charge. Their services are online as well as 175 locations worldwide and include extensive educational materials in many languages. See the survivorship and advocacy sections of the website for more information.

Website: www.cancersupportcommunity.org/

Worldwide cancer helpline: 888.793.9355
Telephone:202.659.9709
Fax: 202.974.7999
Email: help@cancersupportcommunity.org


Dial 211 for Essential Community Services

In many states, dialing 211 provides a shortcut through the maze of health and human services agencies offering medical support programs. Calls are routed to a local or regional calling center where referral specialists match caller needs to available resources and link or refer them directly to an agency or organization that can help. To find out whether 211 services are offered in your area, visit www.211.org. Support services vary.

Website: www.211.org
Telephone: 211


The National Comprehensive Cancer Network® (NCCN®)

NCCN is a not-for-profit alliance of 28 leading cancer centers dedicated to improving and facilitating quality, effective, efficient and accessible cancer care so patients can live better lives. The NCCN website includes a list of NCCN Cancer Centers, clinical guidelines for patients and expert guidance from the world’s leading doctors and cancer centers free of charge.

Website: www.nccn.org/patients/about/default.aspx
Telephone: 215.690.0300
Online contact form: www.nccn.org/patients/contact/default.aspx

COPING WITH CANCER

A skin cancer diagnosis can cause both physical and emotional pain. The organizations listed below offer programs and services to help patients heal the mind and body during treatment and recovery. Many cancer centers, hospitals and medical centers also maintain support groups for their patients and family members so ask your doctor or local hospital whether such a group is available near you.

Coping Support Resources

Support Groups

Cancer Support Community/Gilda’s Club

Cancer Support Community provides a vast range of professional programs offering emotional support, education and hope for people impacted by cancer at no charge. Their services are online as well as 175 locations worldwide and include extensive educational materials in many languages.

Website: www.cancersupportcommunity.org/
Worldwide cancer helpline: 888.793.9355
Telephone:202.659.9709
Fax: 202-974-7999
Email: help@cancersupportcommunity.org


Cancer.net

Cancer.net is a comprehensive compilation of linked resources approved by the American Society of Clinical Oncology (ASCO) to help manage the physical, emotional and social effects of cancer, including support groups and online communities.

Website: www.cancer.net/coping-with-cancer/finding-social-support-and-information
Telephone: 888.651.3038
Email: contactus@cancer.net


SkinCancer.net

Providing patients and caregivers with a platform to learn, educate and connect with peers and health care professionals, SkinCancer.net provides tools and resources to help manage your disease and improve your quality of life.

Website: skincancer.net
Telephone: 484-985-9715
Email: Contact@skincancer.net


Smart Patients

Smart Patients is an online community of support for patients and families.

Website: www.smartpatients.com/home
Online contact form: www.smartpatients.com/contact


Survivornet

SurvivorNet collaborates with the top doctors and cancer centers in the U.S. to create medically reviewed content to help cancer patients, survivors and caregivers get accurate information, comfort and hope.

Website: www.survivornet.com

Young Adult Support

First Descents

First Descents provides life-changing outdoor adventures for young adults (ages 18 – 39) impacted by cancer and other serious health conditions.

Website: firstdescents.org
Telephone: 303.945.2490
Email: info@firstdescents.org


Stupid Cancer

Stupid Cancer’s mission is to empower young adults (ages 15-39) affected by cancer by ending isolation and building community. Their website has a list of resources including many that provide financial assistance for young adults with a cancer diagnosis, meet-up group possibilities and an annual four day gathering called CancerCon®.

Website: stupidcancer.org
Telephone: 877.735.4673
Online contact form: stupidcancer.org/contact/

Exercise and other programs to help you look and feel better

LIVESTRONG at the YMCA

LIVESTRONG assists those who are living with, through or beyond cancer to regain strength and connect with other cancer survivors. LIVESTRONG at the YMCA participants experience improved fitness and quality of life as well as significant decreases in cancer-related fatigue. It is open to adults 18 years or older at low or no cost.

Website: www.livestrong.org/ymca-search


Look Good Feel Better

Sponsored by the American Cancer Society and the Cosmetic, Toiletry and Fragrance Association, Look Good Feel Better teaches beauty techniques to cancer patients during and after chemotherapy, immunotherapy and radiation.

Website: www.lookgoodfeelbetter.org
Telephone: 1.800-395.LOOK
Contact us form: lookgoodfeelbetter.org/contact-us/#contact-us


Wigs for Cancer

Since 2008, Andrew DiSimone and staff have been volunteering cutting and styling wigs for the American Cancer Society’s Look Good Feel Better program. People experiencing medical hair loss due to cancer and cancer treatments can receive a free wig and have it cut/styled by Andrew at the Hope Lodge in New York City.

Website: www.cancer.org/treatment/support-programs-and-services/patient-lodging/hope-lodge/new-york-city/
For Adults in NYC: www.hairplacenyc.com/free-wigs-for-cancer/

CAREGIVER & FAMILY SUPPORT

Caregiver Resources

Caregiver Support

National Family Caregivers Association (NFCA)

A grass roots organization that educates, supports and speaks out on behalf of caregivers, NFCA strives to improve the caregiver’s quality of life by raising public awareness.

Websitewww.caringcommunity.org/
Telephone: 707.539.2364
Email: info@thefamilycaregiver.org


Cancer Care

Cancer care offers support groups, publications and podcasts for caregivers along with a multitude of other educational resources and offerings.

Website: www.cancercare.org/tagged/caregiving
Telephone: 800.813.4673
Email: info@cancercare.org


Caregiver Action Network

Caregiver Action Network offers new funding for local volunteer programs to provide non-medical care to older adults, persons with disabilities and their caregivers.

Website: caregiveraction.org/
Telephone: 855.227.3640
Contact form: caregiveraction.zendesk.com/hc/en-us/requests/new 
Email: info@caregiveraction.org


SkinCancer.net

Providing patients and caregivers with a platform to learn, educate and connect with peers and health care professionals, SkinCancer.net provides tools and resources to help manage your disease and improve your quality of life.

Telephone: 484.985.9715
Email: Contact@skincancer.net

Home Care

Dial 211 for Essential Community Services

In many states, dialing 211 provides a shortcut through the maze of health and human services agencies offering medical support programs. Calls are routed to a local or regional calling center where referral specialists match caller needs to available resources and link or refer them directly to an agency or organization that can help. To find out whether 211 services are offered in your area, visit www.211.org. Support services vary.

Website: www.211.org
Telephone: 211


Elder Helpers

Elder Helpers provides free elder care. Volunteers help carry groceries, run errands, give rides, entertain, help make phone calls, write letters, read and assist with cleaning and cooking.

Website: www.elderhelpers.org/
Email: help@elderhelpers.org


Senior Bridge

Senior Bridge specializes in caring for people who have complex chronic medical or cognitive conditions and taking care of them in their home environment. Licensed nurses and social workers provide professional oversight, planning, coordination and implementation of care plans. They make regular home visits, ensure doctor’s orders are followed, reconcile and monitor medications and more.

Website: www.seniorbridge.com
Telephone: 855.627.3684

Hospice & Palliative Care

National Hospice and Palliative Care Organization

The Caring Info Program of the National Hospice and Palliative Care Organization provides free resources to help people make decisions about end-of-life care and services before a crisis. The site contains comprehensive information and resources to hospice and palliative care and includes advance care planning, caregiving and grief and loss resources.

Website: www.nhpco.org/patients-and-caregivers/
Telephone: 703.837.1500
Online contact form: www.nhpco.org/contact-us/